Almost as quickly as he came into this world, Elis slipped away from us last night whilst in my arms.
Our eternal thanks go to the staff at the Royal Glamorgan Hospital, who against the odds, gave us time to get to know our precious son and above all, loved him too. Also to all our family and friends who have supported us through this ordeal. What an appalling year for us all.
Give your kids an extra big hug and kiss for Elis when you next see them. He couldn't have been more loved.
35 comments:
You've been the best parents he could have wanted. You surounded him with love, care and dedication. In such tough times you managed to show astonishing perseverance and patience. I'm very proud of you both and especially my little sister. David xxx
We can only echo David's comments. You have both been phenomenal parents and we are sure that Elis had a better short life because of your strength, love and care. You gave him everything you possibly could and now need to be even stronger and take care of each other. Elis touched hearts worldwide and will be missed dearly. He will never be forgotten. We love you both and will be with you soon.
Dad and Mum xxx
Never Be forgotten.....Sooo Sorry ,take care of each other
we are here if you need us
Paula Gareth Dylan & Dafydd xxxxxx
Baby Elis got all lov from you both.He must b very proud to get such parents.He is in a better place now.We understand wat u both must b goin through now because we had been through the same pain.Both of you must b strong n take care of each other.You will b alwayz in our prayer.
chippy and family
Elis will never be forgotten, he touched so many of us whilst in hospital and you both were such a great help and support to us all whilst in there. even though times got really rough Josie you stood tall and put on a brave face and il always admire you for that and remeber the good times we all shared in high dependency, all our love
Amy and Tia x x x x x
Im heartbroken for you both, even though i've havent known you for very long i feel very proud to have met such a kind and warm hearted person as josie and a lovely little chap as elis. I hope you take comfort that you were wonderfull parents in his short life.He will be dearly missed and never forgotten thank you for being friends with Amy and Tia. All my love to you both Carole (Amy's mum )
We are absolutely devasted for you, but you can be so proud of yourselves as you made Elis's short life so happy and full of love. You are all very much in our thoughts, take care. Heather and Ross.
We are so desperately sorry, Elis fought back so many times we began to think he was invincible, so although we knew how ill he was the news was still a shock. Our thoughts & prayers are with you.
Love Jane, Wes, Rufus & Elliot XXX
We are full of admiration for you both. An incredibly difficult journey has shown you to be truly amazing parents. You did Elis proud and he did you proud too by all his efforts to stay. Just know that you are being held close by so many people here and across the world.
Penn and Jan xx
You both have been the most caring and loving parents Elis could have ever wished for. Our thoughts are with you both. Alun, Rachel, Gwawr and Ffion xxx
we are so deeply deeply sorry to hear your very sad news. we can only echo other comments - you had a beautiful son who was clearly very loved - you are devoted and loving parents - he was so lucky to have experienced such love.
Be strong for each other. Thinking of you
love Bledd, Fran & Fflur xxxxx
Elis has touched our lives round the other side of the world in Australia. Lorraine and I have been checking every few days to see how he was. He will leave a little gap in our lives as well.
Our thoughts are with you. Brenda & Lorraine
So sorry to hear about Elis, he was a special little chap and you have both been through a very difficult time. Our thoughts are with you. Love Pam, Graham, Richard and Lucy x
Josie, you have given me strength, courage and support over the past months during my time in the unit. You are an inspiration to every parent in SCBU and not many things evidently got you down. No matter how low I felt, you always managed to pick me up and I can't thank you enough for this.
Elis will always be in our thoughts and he will never be forgotten by anyone who had the honour of meeting him. Elis will be remebered to us as one of the "Three Musketeers" along with Jac.
Josie, please don't hesitate to contact me in anyway if there is anything I can do for you.
Always in our thoughts,
All our love,
Kerry, Sophie and Jac x x x
Elis and your devotion to him during his short life touched our hearts and it came as a great shock to know that he has passed on. In your time of loss and hurt we reach out to you with love. We pray that your family and friends, and the love you have for each other, will soothe the pain you are going through. We are hurting with you.
Sharon, Mark and James, Cape Town
There are no words to express how sorry we are. Elis has touched everyones hearts and lives and will never be forgotten. You have been so strong and inspirational. You all are in our thoughts and prayers. If you need anything you know where we are. xxxxxxxx
We are so sorry to hear of your terrible loss, Elis trully was loved by all and will be missed so much. You are in our thoughts, all our love
Kim, Paul & Daniel xxx
We are thinking of you both and your family, during this difficult time. From everything we heard and seen, Elis could not have been better cared for or more treasured. Angélique & Will xxx
We are heartbroken and devastated for you, as others have said we were convinced Elis was invincible and cannot even begin to imagine how you are feeling at this moment. You have both shown such courage over what has been an horrific year. We are so so sorry for your pain and loss and just want to throw our arms around you both to shield you from it all. Elis couldn't have wished for a better Mam and Dad, and he will never be forgotten.
Love and courage to you both, we are here for you, please take care of each other,
All our love,
The Rocks
xxxx
looking after your wonderful son was an honour. You were the best parents he could have hoped for and your love for him an inspiration. You made his world a better place and his short life a happier one. he will alway be "in his own time elis" my love to you and your families Leona (the loud one) xxxxx
Here's to Elis! A remarkably brave little man who made a huge impact on so many people's lives.
Thank you both for enabling us to meet and work with both yourselves and Elis, it was a pleasure getting to know you.
Josie and Glyn, you should pride yourselves for being the best parents Elis could ever have wished for. Your courage and determonation has been admiral.
Elis will never be forgotten. My love and thoughts are with you both. Leanne (NNU) xxxxxxxxxxxxx
Saddly I never got round to meeting the young man - but I had been following his progress and like others was convinced little Elis was invincible.
I am so sorry to hear about your loss. You were both fantastic parents and more than Elis could have asked for.
All my love goes to you both and I hope your strength continues.
Please let me know if you need anything.
Tori xx
I've followed your story from the beginning and have nothing but admiration for both of you. Elis will never be forgotten, and you have both been incredibly loving and resilient. Take care. Mike S
Dear Josie,Glyn,Grandparents and extended family,
Our hearts broke for you all when we read of your terrible loss. Our love and prayers are with you all.
Remember that Elis will live on in all our hearts and there he will always be brave,beautiful and courageous. You have enriched all our lives by sharing his journey with us and have been inspirational in your strength and love for him. We hope that you will find comfort in having those dear to you near and remember that even though we are a world away we reach out to hold you close.
Love Jenny, Kev,Jeff,Jacki and David Nuttall
I'm so sorry Josie & Glyn. I can't imagine your pain. I wish you all the courage in the world. Our thoughts are with you always.
Ceri, Dan & Finley
xxxx
In such a short space of time Ellis had made such an imact on this world. He was loved by everyone who met him. Ellis could not have asked for more loving parents.
I am so glad I got the oportunity to care for such a wonderful strong in his own way,little boy as Ellis. My thoughts are with you both.
Love Rhian xxx
Oh Josie & Glyn, words seem so inadequate .... but what an amazing brave little man you loved, nurtured and cheered on while he was with you. Thank you for sharing him too - what a fan club he has and so do you. Thinking of you very much. Katharine & Charlie x
Dear Josie and Glyn,
I am so sorry to hear of your loss.
You have to try and take some comfort in the fantastic months you gave Elis. He couldn't have wished for better parents and was surrounded by so much love.
You both need to concentrate on supporting and loving each other to try and ease the pain.
If there is anything I can do you know I am always here.
Love Jeanette xxxxx
A friend of mine said that spiritually children chose their parents for the life lessons they learn... Ellis couldn't have chosen better! Your gift to him was unconditional love and even during your heartbreak I'm sure you'll are an inspiration to others.
I am SO incredibly saddened for you guys... Ellis has done more in his short life than others can every hope of achieving.
My thoughts are with you both and with your family. Sending you big hugs from Australia.....
Take care of each other
Lots of love
Julia XXX
Josie, Glyn,
This is just absolutely tragic news.
I'm so grateful to you for maintaining your blog, as it has enabled me to feel like I knew Elis. He brought joy to my life. Thank you for sharing your time with Elis with us.
It is an absolutely heart-breaking end to your awful year, and we wish you all the love and strength in the world.
I'd like to echo the above messages, and say that it was plainly obvious how much love that little boy received. And I'm sure he knew it.
Love, Kieran x
Far out from the shadows came a sound,
Familiar, yet unknown.
A sound that felt the brightness of the light that shone,
From me.
And mixed up, I touched this light,
Tingling, smiling, crying.
And felt something that was always there,
Only shown by him;
Through him.
He dimmed;
And so I did.
He rose, and I rose.
Together, and now, separate.
He and the light that shines, stops.
Hushed shadows in all places,
And I feel something that was there, always
Shown by him.
Thinking of you both,
if there's anything I can do at all
Hugh XX
to the bravest little man ever Elis, who really did touch the hearts of all who met him, he will be sadly missed by many but will never be forgotten. Josie and Glyn its parents like you who make our job that much better and give us the inspiration to go on
my love and thoughts are with you
sue x
Josie and Glyn
I'm desperate for you both.
I thought I'd had a bad day until I heard your tragic news this evening.
I can't pretend to understand an ounce of the pain you have been through, but know this evening that all my love and thoughts are with you and your family.
I'm so glad you have each other right now.
Much love,
Kev
Josie and Glyn, it was such a pleasure to be able to look after such a wonderful little boy. Elis will be missed by us all on SCBU. My thoughts are with you both at this very difficult time.
Take care, lots of love
Cath xx
Josie and Glyn,
We've been out of touch for a long time, and I only found out what you have been going through right now. I cannot imagine how you must be feeling, but am thinking of you and hope that all the goodwill shown in these postings helps just a little.
Giles, Barcelona
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