Elis seemed to be doing well on Sunday and Monday. We went out for another walk on Sunday with Nain, Taid and Anti Angharad (and two nurses), although he didn't really wake up for it - we enjoyed it though!
Yesterday I gave him a bath, which he enjoyed (his feet really stank!) and was awake enough to have two really good feeds during the day. Unfortunately, his health has deteriorated over night and he was having more serious desats and bradys and has had lots of thick secretions again. He had a number of blood tests and another chest x-ray early this morning and it looks as though he has a chest infection, possibly pneumonia. His x-ray shows that his lungs are worse now than they were back in July when the last one was done.
He's been put back on CPAP which he is hating, but it has brought his CO2 back down a little and is giving him a bit more breathing support than the low flow. He's on 100% oxygen already though so if he gets much worse, he could end up back on the ventilator, which we desperately hope wont happen. The started him straight away on two types of IV antibiotic to try to fight the infection even though they don't know yet what the infection is. Now we just cross our fingers that they start working before he gets any worse.
2 comments:
Sorry to hear things aren't going so well, it is always 2 steps forwards and 1 back although I know you must feel that it's vice versa sometimes. He's a real fighter though and he'll keep battling. I also know both you and Glyn have the strength to keep positive as well, thinking of you and sending you all a massive hug and tonnes of strength!
Love Jane, Wes, Rufus & Elliot
Elis is a little fighter and this is just a small hiccup in what is a wonderful progress for someone so little. Once the anitbiotics kick in and he gets some rest we're sure that he'll be feeling much better and having cwtches with Mammy once more! If you need anything you know where we are
xxx
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