Today has been a funny old day really. Elis has hit some real highs and real lows during the day, whereas I have gone for consistancy and not been able to drag myself up from the lows.
When I arrived at the hospital this morning, the news was still good as Elis had continued his good behaviour through the night and had a settled start to the day. Next thing I know, he is desaturating and ends up being bagged three times in about an hour. After a run of stability, this sudden slide hit me hard, especially as it followed right after the consultant saying how disappointed he was with Elis' progress on this course of steroids.
Elis did settle down again and whilst I was out for lunch, his oxygen came down as low as 62%, which is lower than it has been for well over a week. However, just before I came back into intensive care, the nurse changed his nappy, which he was so unhappy about, he needed bagging again. Once again though, once he was settled down again, his oxygen requirement came down to about 70%.
I have just phoned the hospital to get an update, and unbelievably, he has been fine all evening and his oxygen is currently down to 60% and his blood oxygen saturation at 100%, which is almost unheard of based on his recent performance. It's so strange that he can do so well and so poorly in one day. Again, we're left hoping that he can keep up the good performance...
3 comments:
Yesterday must have been difficult for you Josie. Elis ended the day well and this is bound to be a good sign and gives you encouragement.
There's no doubt that he's a fighter!
Nain
Would certainly agree with this Josie, he takes after his mom! He may have some distance to travel but look at how far he has come....
Thinking of you
Julia
It must be so frustrating Josie & Glyn. But he's an amazing little fighter!
Clare
XXX
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