Elis has been relatively stable again over the last two days although he has still required bagging a couple of times a night. His oxygen requirement has come down slightly and despite the bagging instances, his blood oxygen saturation is generally much more stable.
He has put on another 60 grams (about 2oz) over the past 10 days, which isn't a huge amount, but at least its going in the right direction! He was really active this morning fighting his prongs and his feeding tube and was having a really good look around. He's got so good at grabbing his feeding tube and pulling it out that the nurses try to make it harder by putting mitts on him but he still pulled it out twice this morning! Attaboy!!!
2 comments:
Elis, it was really lovely to meet you today!
Josie, thanks for allowing me the priv of meeting the little man. He looked so wonderful especially when he was getting rather excited in his desire to look around!
Spending time with you both today reminded me of just how precious life and people are....You're doing a terrific job, lets hope he's through this difficult phase real soon.
Take care lovely lady!
Julia
p.s. I've got a docs appt Monday pm to check out this fluid approach to steroids! Cheers Elis!!
Jx
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